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A. Background of the Scientific
Consensus Process
This meeting is the second in a series of five that will occur annually.
The first meeting held one year ago focused on suicide in youth and young
adults. Taken together, this series is designed to facilitate development
of scientific consensus concerning the best practices for suicide prevention
in specific segments of the population: youth and younger adults, older
adults, men in their middle years, and women. The fifth meeting will be
devoted to a summary assessment of the field’s progress to date.
The specific aims of the conference series are to:
- Develop a consensus among clinical and public health researchers,
and among key community and political leaders, including governmental
agencies and non-governmental organizations, regarding those factors
known to predict increased risk, or show protective benefit, for suicide
or serious suicide attempts – across the age spectrum, within
distinct population groups, and for each gender;
- Systematically propose research to address areas of insufficient
knowledge regarding risk factors specific to critical populations (i.e.,
those accounting for the greatest amount of burden due to morbidity
and mortality), while examining as well those factors that protect similarly
vulnerable individuals;
- Utilize evidence-based approaches to review scientific data regarding
the effectiveness of proposed or tested methods to reduce suicide, including
population-oriented and high-risk approaches, as well as suicidal behaviors
and their attendant morbidity;
- Foster consensus on the best methods for population-oriented universal
prevention, and preventive-clinical interventions to treat those individuals
and groups who have been identified as being at highest risk;
- Aggressively disseminate research findings and workshop recommendations
to the scientific community, policy makers, and the public through a
series of review publications and the use of electronic information
and networking strategies.
B. Background of the Year 2 meeting: Suicide Prevention in Later
Life
Suicide is a major public health problem in the United States, where
30,000 people take their own lives each year. Although the largest number
of suicides occur among people in mid-life, elders have higher rates of
suicide than other segments of the population. Older men in particular
bear increased risk. Older adults are the fastest growing segment of the
population, a trend that will continue in coming decades as the post-WWII
"baby boom" enters late life. Further, the baby boom cohort
has carried higher rates of suicide throughout life than previous or later
birth cohorts at the same ages. This combination of demographic and cohort
effects suggests that there will be an increase in the absolute number
of suicides by senior citizens in the years to come.
Whereas the clinical approach to suicide prevention emphasizes the history,
health conditions, and warning signs that precede suicide in an individual,
the public health approach focuses on identifying patterns of suicide
and suicidal behavior throughout a group or population. The public health
prevention research model is constituted by five integrated steps –
surveillance to define the problem, the identification of causal risk
factors, development and preliminary testing of interventions, the implementation
of interventions on a larger scale, and the evaluation of their effect.
The application of the public health prevention model to the problem of
suicide is reflected in the National Strategy for Suicide Prevention (NSSP):
Goals and Objectives for Action. Published in 2001, the NSSP is intended
to serve as a road map for moving suicide prevention efforts forward in
the United States, guiding the coordinated efforts of an array of stakeholders
in the public and private sectors. Next steps must include the development
of more detailed plans for specific activities that correspond to each
objective. Because the biological, psychological, and social characteristics
and contexts of population subgroups differ, the NSSP’s objectives
and the specific activities derived from the NSSP must be modified to
address their particular needs. The effort this year focused on the needs
of older adults.
C. Sponsors and Contributors
Support for the Year 2 meeting was provided by funding from NIMH, NIAAA,
NIDA, NINR, CDC, and SAMHSA. Additional contributions were made by Pfizer
Pharmaceuticals and Forest Laboratories.
D. Organization and Process
Meeting participants represented a broad array of perspectives and stakeholders
integral to the consensus process. They included representatives of government
agencies and non-governmental organizations, researchers, primary and
mental health care providers, clergy, and others. Meeting activities included
both plenary addresses and breakout groups. Introductory plenary sessions
provided a common knowledge base regarding the epidemiology of, and risk
and protective factors for, suicidal behaviors in later life, definitions
of the public health model and terms, and preliminary results of a national
survey of elder suicide prevention initiatives.
Breakout groups were then formed a) to consider the strength of the evidence
for risk and protective factors and for the effectiveness of implemented
interventions, and b) to review and refine the proposed elder-specific
NSSP goals and objectives.
A final series of plenary sessions was then held to reach large group
consensus on a) modifications to the proposed elder-specific goals and
objectives, b) priorities for implementation of preventive interventions
for later life suicide, and c) priorities for future research.
E. Goals and Outcomes
The meeting had three primary goals. Each is listed below with a description
of the issues raised and consensus reached by participants.
1) Our first goal was to examine the evidence base for current knowledge
regarding elder suicide at each step of the prevention research spectrum,
including surveillance, identifying causes, translation of research to
practice, and program evaluation.
- Surveillance: Surveillance for completed suicide in later life is
well established. Vital statistics reporting is systematic nationwide
and provides important data with which to monitor trends and inform
policy and research priorities. However, some experts believe that elder
suicide may be underreported due in part to social stigma leading families
and officials to misclassify cases, and in part to the lack of broadly
accepted, rigorously standardized definitions and reporting requirements
for suicide. Also, elders are a heterogeneous group. Insignificant attention
has been given to the collection and reporting of surveillance data
for suicide in specific subsegments of the older adult population defined
by age (e.g. the oldest-old), geographic region (including rural vs.
urban), and race and ethnic background. As suicide in older adults is
a relatively uncommon event, the small number available for epidemiological
analysis poses a special challenge.
Another serious deficiency is the lack of a nationwide or even comprehensive
regional surveillance system for non-fatal suicidal behaviors in older
adults. Creation of a reliable and valid system for tracking suicide
attempts among elders would provide critical information to augment
our understanding of the epidemiology of this important form of preventable
morbidity. As well, it would provide the infrastructure for targeting
and evaluating the outcome of preventive interventions, and facilitate
research to define the similarities and differences between populations
of elders who attempt and those who complete suicide.
- Risk factor definition: Much progress has been made in recent years
in the definition of factors that place older adults at increased risk
for suicide. Evidence from a recent series of carefully conducted retrospective
case control (psychological autopsy) studies was reviewed. It is clear
that psychiatric illness (especially major mood disorders), a prior
history of suicidal behaviors, physical illness and functional impairment,
social isolation and stressful life events (especially physical illness
and family or interpersonal discord) represent risk factors for suicide
in later life. The knowledge base, however, remains limited in a number
of areas. In particular, there have been no large-scale prospective
cohort studies conducted in older adults that have included careful
documentation and tracking of putative risk factors and suicidal behaviors
as predictors and outcomes of primary interest. The existing case control
studies all lack sufficient power to examine adequately potential moderators
of risk factors for late life suicide. Few data are available to explain
how people with significant risk factor ‘burdens’ may be
protected from suicide. Discerning such protective factors could inform
the design of prevention programs. Finally, virtually no research has
examined possible contributions of biological factors to suicide risk
with increasing age.
- Implementation of preventive interventions: Despite limits to our
knowledge, the existing evidence provides sufficient basis for the development
of elder-specific suicide prevention strategies. However, very few programs
have been implemented. A survey of initiatives in the U.S. identified
13 agencies or organizations reporting suicide prevention programs pertinent
to elders. Further examination revealed that several were only in the
planning stages, and of those in operation, only five specifically target
older adults. None could be characterized as community wide or as offering
a complete array of universal, selective, and indicated preventive interventions.
The Link Plus-Life Crisis Line in St. Louis Missouri, the Center for
Elderly Suicide Prevention in San Francisco California, and the Spokane
Mental Health Center’s Elder Services Program in Spokane Washington
are particularly well developed examples of promising approaches.
- Program evaluation: These three programs are also the only ones to
have published program evaluation data. The virtual absence from the
literature of outcomes assessment for late life suicide prevention programs
is a significant limitation.
- Barriers to progress: A number of barriers were identified to the
translation of pre-intervention research findings to the design, implementation,
and evaluation of later life preventive interventions for suicide. These
include lack of funding; the lack of researchers, clinicians, and other
staff members with sufficient training in these areas; high staff turnover
in those programs that have piloted programs; lack of resources (expertise,
infrastructure and funding) for program evaluation; and poor coordination
of the agencies involved.
2) Based on that evidence base, we next sought consensus on NSSP goals
and objectives tailored specifically to address the challenges of suicide
prevention in older adults. Breakout groups were charged with reviewing
the current NSSP goals and objectives and adapting them as indicated by
our current knowledge base to the more specific task of older suicide
prevention. The NSSP goals and objectives were divided into universal
prevention approaches, selective prevention, and indicated interventions.
Each of three breakout groups then reviewed the goals, commenting and
suggesting revisions to make them more applicable for this age group.
These suggested revisions were in turn reviewed in a final plenary session
to arrive at consensus goals and objectives, which are attached as Appendix
1.
3) Our third goal was to develop consensus on priorities for next steps
in a) preventive intervention strategies and b) research.
The discussion of priorities for next steps took place in the final plenary
session in two parts.
- Priorities for preventive intervention: The group first considered
priorities for prevention programming, responding to this question:
"Given what we do know about risk for, and prevention of, suicide
in older adults, where should we put available prevention resources?"
Discussion regarding priorities for prevention programming reflected
first and foremost a sense of urgency that the general public, elders
themselves, their families, and their clinical and community providers
lack an adequate understanding and appreciation that suicidal behavior
in older people is ordinarily a sign of illness and a preventable
form of morbidity and mortality. There were repetitive calls and clear
consensus for placing highest priority on the development of educational
programs targeting each of these groups. Educational content should
include aging, ageism, and life cycle developmental issues; the assessment
and treatment of suicidal states in elders; the assessment and treatment
of more proximal risk factors, including depression and substance
abuse; and the support of healthy lifestyles, including physical activity
and social connectedness. The approaches advocated included both standard
curricula and the application of newer information system-based pedagogy.
Use of mass media was advocated -- public education campaigns utilizing
public service announcements and high profile spokespeople to reduce
ageism and stigma regarding mental health care for older people, and
supporting positive models of aging, including among those who are
dependent on others for care. As well, media campaigns should target
professional schools and postgraduate education for healthcare and
social service providers at all levels. There was a consistent call
as well for the establishment, where feasible, of accreditation processes
and the delineation of required competencies in each of these content
areas.
A second area of clear consensus was on the need to establish partnerships
between stakeholder groups so that prevention programs reflect the
necessary degree of interdisciplinary collaboration. More specifically,
participants called for the empowerment and incorporation of survivors
in the process, and more explicit roles for representatives of faith
communities, home care providers, social service professionals, and
the primary care delivery system. A common theme, consistent with
the emphasis on education programming, was that a broad range of people
and groups throughout society should have an understanding of, investment
in, and responsibility for suicide prevention in older people. Though
not discussed explicitly during the meeting, there was an inherent
recognition that the prevention of suicide and suicidal behavior is
not recognized as a high priority for many major community action
groups. Future efforts should be devoted to educating community stakeholders
about the common risk factors that underlie suicide and other major
social problems.
- Priorities for research: The second phase of the final plenary session
addressed the question, "Given an infusion of funds for research,
what priorities would you set for their use?" Participants stressed
three areas. First, they pressed for the development of more and better
tools for the study of suicide and its prevention, including screening
measures and pertinent scales for use in subgroups of the elderly population
(e.g., the medially ill). They called for an expansion of fundamental
risk/protective factor research that included sufficient sample sizes
to examine subgroup differences and more complex models of risk determinants.
A major focus in this area, however, was on protective factors, addressing
issues such as the impact of resiliency and the role of formal and informal
helping networks for older adults. Participants expressed interest in
means to measure and influence physician behavior, particularly as it
relates to the recognition and treatment of depression in older adults.
As well, they stressed the need for more extensive treatment research
for late life mood disorders.
Finally, there was clear consensus that conducting more extensive
evaluation research was of high priority. Needs include the development
of tools to evaluate current and proposed interventions, and resources
and infrastructure for dissemination of research findings.
F. Summary
The meeting brought together a broad array of participants representative
of the stakeholders central to later life suicide prevention programming.
The different perspectives represented were not always easily reconciled.
Nonetheless, common themes and consensus emerged. The process reinforced
that our knowledge base concerning risk factors for suicide in later life
is rapidly expanding. Additional research is needed to refine further
our understanding of who is at risk and why, and thus inform the design
of more effective preventive intervention strategies. However, even our
current knowledge base is sufficient to form the basis of program design
and implementation. Greatest emphasis should be placed on universal prevention
strategies, stressing educational interventions, although their combination
with selective and indicated strategies in complex interventions offers
most hope for effecting significant reductions in late life suicide rates.
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